Return of Results from Research Using Newborn Screening Dried Blood Samples
نویسندگان
چکیده
منابع مشابه
Return of Results from Research Using Newborn Screening Dried Blood Samples.
There may be compelling reasons to return to parents a limited subset of results from research conducted using residual newborn screening dried blood samples (DBS). This article explores the circumstances under which research results might be returned, as well as the mechanisms by which state newborn screening programs might facilitate the return of research results. The scope of any responsibi...
متن کاملLessons from the residual newborn screening dried blood sample litigation.
journal of law, medicine & ethics Background Most babies born each year in the U.S. undergo mandatory newborn screening to detect serious medical conditions that can cause devastating effects if treatment is not initiated prior to the onset of symptoms.1 Not all of the blood collected from newborns is used during routine newborn screening, and many states retain the residual dried blood samples...
متن کاملNewborn dried blood spot screening: residual specimen storage issues.
Traditional newborn dried blood spot screening (NDBS) has expanded in recent years to include upwards of 50 different conditions in many states. Once the screening tests are complete, the residual blood specimens (RBSs) that remain are most often available for quality assurance and public health research. The articles by Botkin et al1 and Bombard et al2 contained in this issue of Pediatrics inv...
متن کاملStorage and use of residual dried blood spots from state newborn screening programs.
OBJECTIVES To provide current data for policy discussions and to assess future needs among newborn screening programs regarding the storage and use of residual dried blood spots (DBS) in the United States. STUDY DESIGN An electronic questionnaire was administered to U.S. state health department laboratory directors in 2003. RESULTS Responses were received from 49 of the 50 states. Approxima...
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A previously described difference in newborn blood phenylalanine concentrations between those living in urban and non-urban areas in the south west of England has been confirmed and shown to be independent of the type of feed. Several factors including the place of abode, type of feed, birthweight, and the accuracy of the test have been found to affect the measured, phenylalanine concentration ...
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ژورنال
عنوان ژورنال: Journal of Law, Medicine & Ethics
سال: 2015
ISSN: 1073-1105,1748-720X
DOI: 10.1111/jlme.12299